In partnership with Cardiomyopathy UK, we are looking for ways to help people with heart muscle disease participate in research to move science forward and improve healthcare and quality of life. Patients often want to take part in research, but opportunities are concentrated around universities and major hospitals or involve long distance travel preventing many patients from getting involved.
The heart hive will make research accessible to everyone. Patients can upload their own health information to our secure web portal and decide which projects can use it. Genetic information can be collected via saliva kits sent out through the post. Check out http://thehearthive.org for more information.